the good and the bad

So it’s been 6 months and 7 days since Riley’s accident and this was supposed to be his “golden time”. The time in which you get the most back because hopefully, by now the swelling has gone down around the contusion. However last week on Tuesday Riley woke up and he had without warning lost everything he had gained. All the sensation from his nipples down was gone and when I scratched his feet he couldn’t feel it. We immediately went to the hospital and saw his spinal cord doc she ordered an emergency MRI in fear that he had post traumatic swelling of his spinal cord. In which case he would have to have another surgery. However the results of the MRI were much more damaging then the idea of another surgery. The MRI shows that Riley has damage to his brain stem indicating a possible stroke. When and if that stroke may have occurred is unknown at this time. I had to track down all the other MRIs and x-rays from the other three hospitals and we still have to meet with a neurologist in order to decipher what this news means.

However the thing is that Riley’s spinal cord doc said there was no explanation for him being able to feel his feet in the first place after reviewing the most recent MRI. She said all the swelling and blood was gone and what remains is a very damaged spinal cord.
With that being said, Riley is obviously still trying to wrap his head around this discouraging confusing news. In the meantime he has decided to take the high road staying positive, refusing to give up hope and taking life one step at a time. As many of you know Riley’s current film project titled “Transitions” has been his passion for the last two years and he continues to work hard at it every day he’s still planning to release it in September.

The next time you talk to Riley, please don’t ask him how his progress is coming along or how the physical therapy is going. You can imagine how frustrating it is to reiterate this news to everyone who checks in on him, he will bring up his progress when it is right for him. The last thing either of us wants to admit is that he is starting at the foot of the mountain again with no view of the peak in sight just blinded by the sun trying to hike up a road that doesn’t exist.

We remain hopeful and convinced that the body and brain remain unexplainable to modern medicine and since they can’t explain how he did it before, and they can’t explain how he lost it. Then they won’t be able to explain when he summits that enormous peak and proves them wrong once again.

Always fighting
Katinka
(not an english major)

And the Fundraising Commences

Throughout the year we will be partnering with the NTAF in order to raise money for Riley to offset the cost incurred from the hospital stay, rehab, etc. Currently I have built a mini store – http://www.rileypoor.bigcartel.com/ – where you can purchase Riley’s favorite hats and good mantra stickers items will start ship Feb. 1. Soon we will be doing auctions of a random assortment of goods donated from all his lovely friends. Including skis from Simon Dumont, skate decks from Tony Hawk and other random items so check back often in regards.

If you are old school feel free to send Riley your well-wishes at:

Riley Poor

PO BOX 4105

Boulder, co 80306

P.s. If anyone has any fundraising ideas please email me at bobknits@gmail.com

thanks for all the support we can feel the love and consequently Riley is doing amazing! Still lip reading and rejoicing after every slight wiggle of his toe or tingle on his arm, but, he is on his way.

thanks

tinka

note from riley & katrina (aka tinka)

Riley finally had 2 coherent days he finally got a chance to read all your praise tonight. He’s exhausted and I have to read his lips since he can’t speak yet due to the trach. He wants to thank all of you for your out pour of support and he promises he will get back to everyone once he has use of his hands.He also wants to say he misses more than anything his crew and he was able to watch x games. All he can say is I love you Simon and Tanner you guys continue to amaze him and he can’t wait to be back out there with you again soon.Riley wants everyone to know that he can feel the love and energy and it tingles his body every day. Riley is confident he will make a full recovery with all of your love.

thank you,

Riley & Tinka